Tuesday, June 30, 2015

Weekend Review

 I don't have anything to talk about but I do have some random pictures on my phone.

Jonathan's parents are here for the week and they are helping out with the chaos that is the Texas-Bost house. David Bost is taking over the driving duties for the week. Becky is watching the kiddos so I can run errands.  It's bad when all you have in your fridge is cream cheese and squash.  I'm taking the week off from treatments to play with the kids also. Henry is having a hard time and needs some mama time/discipline- He loses his mind when he thinks he is in charge. :)

The Cobles left on Saturday but before they left we spent as much time with them as possible.

Splash park/park time.





 Friday, Jonathan had a later radiation time. We decided to make the most out of being at dallas at 5:00 so we had a triple date with the Cobles and my parents. It was our last hoorah before they headed back to Georgia.

Team Jonathan!

 
 Dinner in Dallas with my love.
 Mary: Hey, take a blurry picture with me!
Jonathan: Okay.
 Mary: Let's take another one just to make sure we got a good one!
Jonathan: Okay...
Me and my sissy. (We missed you emmy.) Real quick lets discuss the romper- There is nothing sassier than a romper. I felt like a mom rockstar! Thanks Dayle for tracking down the cutest romper ever!
On Saturday, a blast from the past showed up at my front door! Elizabeth from Bentonville! It was so fun to catch up, laugh, and pray with you, Elizabeth! Also, Elizabeth showed up looking like a movie star and I had on my pajamas and bed hair...
 Yesterday I had a Dr. Appt and needed to run errands. Before I went to the store I stopped by our Sunday schools group swim party to say hi to all my people. I love this group and all the fun things we do together!


Fyi- Pam is not naked!

God is bigger than this and Jesus can fix-it. 

Monday, June 29, 2015

I have a staring problem.



Stare- look fixedly or vacantly at someone or something with one's eyes wide open.

There is a lady at church and I can't help but stare at her. Our sanctuary holds 5000 people. We sit in the back. (Mainly because it takes us two years to drop our kids off in their classes.) She sits on the exact opposite end of the sanctuary from us. There are 1000 people in between us and she stands out. 

I can hear her worship above everyone. She is louder than the choir. Her love for Jesus is evident in her face. When she sings she glows. I can't take my eyes off of her. 

Jonathan always catches me when I stare... "Mary, what are you looking at?" "I'm watching this lady sing." "Why?" "Because I want to love Jesus the way she does, I want people to see it across my face. I want to be able to not say a single word and people say, "Girlfriend loves Jesus." 

To which Jonathan replies, "I don't think you are suppose to stare and deaf people. It's kind of rude, babe." 

I can't help it. She loves Jesus and I can see it on her face and in every hand sign. I can see her love for Jesus over all the loud voices. Yesterday, we sang Amazing Grace and I almost cried watching her.  It was too beautiful not to stare. 

This is how we are suppose to worship. We are the hands and feet of Jesus on earth: May our actions speak louder than our voices and may we stand out because of Him. 



God is bigger than this and Jesus can fix-it. 


Friday, June 26, 2015

We're okay and Something Amazing.


I'm sorry. I haven't gone to the dark side. This has been a long week. Here are a few updates.

Jonathan-
We have 13 more treatments left. They are getting harder on Jonathan each time. You can see it physically drain him but by the time we get home he feels better and we continue on with our night. He finishes working and I play with the kids.

Henry-
Henry is having a hard time. He doesn't like to be separated from me. This has rocked his little world. He screams for me if I leave the room. He follows me everywhere. He cried the other day and called for me and said, "Mommy, come and get your baby. He is crying." Guys- the kids is three...

Lucy-
Now that she knows what is going on She is fine. The Cobles have occupied her time and thoughts the past three weeks!

Mary-
I am tired. Mostly because of Henry and Traffic. Does anyone have a helicopter? I could use one for the next 2.5 weeks. My mom treated my sisters and I to a massage. Laura and I had a couples massage. Weird? No, my sisters are my bffs! Anyway, she said she was pretty relaxed until I started snoring.... I woke up feeling so good!

Something Amazing-
I remember holding newborn Lucy in my arms. I couldn't take my eyes off of her. I was mesmerized  at her tiny body. How could this tiny person have all of the organs and bones that I have in me condensed down to such a small body? That was the first time I really realized just how amazing God was. He had this whole thing figured out. Every inch of her was perfectly thought over and designed. And my mind was blown and I cried about how wonderful He was. Sometimes when I get a little overwhelmed I imagine that sweet newborn 7 pound 14 ounce bald baby. She was perfect because of him. (She was also colicky because of him but I'll bring that to his attention later.)

God is bigger than this and Jesus Can fix-it. 

Thursday, June 25, 2015

Tired

Hey God,
I'm tired. I know you love me. I know you know my future. I know you have this whole thing planned. I know you know how it ends. I can feel you smirk at your plans that I don't know. But I'm tired. I'm worn out. I'm stretched thin in every aspect of my life. I'm tired. I love you and your son. (Jesus-wipe that smirk off your face- I can't see the future-I'm tired!)
Mary

PS- Also, while you are doing great things will you help henry sleep past 4:45?

God is bigger than this and Jesus can fix-it.

Wednesday, June 24, 2015

He doesn't abandon.

Before I leave to take Jonathan to treatment, I drop the kids off at my moms house for my sister to watch. Emily, Laura or my Mama watch the kids when we go to treatment. It's easier. I don't want them in the car for 3-4 hours a day. After dropping them off and before I pull away, I can see them standing at the window watching me. Lucy is sad. Henry screams for me. That is hard. I don't abandon my kids. I love them. I stay at home with them so I can experience the day with them. They are only little once.

They run and hug me when I return at the end of the day.  Henry hugs me and grabs my face and says, "I thought you lost me." It breaks my heart. I tell him, "Mommy always comes back. Mommy loves you and I will never leave you."

What they don't know is that while I've been away, while I have been driving, while we have been separated, I have been planning our next adventure. I have plans that they don't even know about: Day trips, camps, conversations, birthday parties, Christmas presents, vacations, outfits, dinner, snacks, my grandma names (I'm thinking Crazy Mary), and the list goes on. I make plans for us. They may never know the plans I am making until they experience it.

And that is what God is doing for us also. I will never know His Will until we experience it. I just hold on to the truth that He does not abandon His children. He loves us. He makes plans for our future. I trust Him. His Will, His Way.

For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.
-Jeremiah 29:11

God is bigger than this and Jesus can fix-it. 

Tuesday, June 23, 2015

A Day in the Life: A Walkthrough

Today, I thought I would give you a glimpse of our day. It's our new summer schedule/routine. 

My day begins at 5:15. That is when my first alarm goes off. 
5:15-5:30- This is when I lay in bed and surrender the day to the Lord. I give him the day and lay and listen. Sometimes we sit in silence, sometimes He gives me scripture, sometimes a song, sometimes a person to pray for or contact but it it very important for me to lay in silence before the Lord. 

At 5:30 I get up. I always go straight to the coffee pot. I heart coffee. I like to use the biggest cup setting on my keurig in case you were wondering. After I get my coffee I sit down at the computer. I usually blog. I try to have a post up by 7. 


By 6:00 this guy is up. We like to watch George or Thomas in the morning together.  Sometimes I can read my bible while we watch or we will just snuggle. I love my morning snuggles with this guy. His sister has been taking advantage of summer and sleeping in until at least 7:30.


By 7 Henry likes to get dressed for the day. So we head upstairs and he picks out his clothes. He usually likes to wear a cow shirt (polo). While he picks out clothes I make his bed and fold laundry. I don't mind folding laundry but I hate to put it away... (I did Marci.. I put it away and I mated Lucy's socks)


At 8 I sit and have my breakfast. Green smoothie for the win. Lucy and Henry love these too! My mom takes Jonathan to work in the morning. She picks him up at 8:20.


My mornings are spent with the kids. We try to spend as much time as possible together before I take Jonathan to treatment. Yesterday our activity was the pool with our friends and cousins. My sister is still in town until Saturday. We are trying to soak up as much Coble time as we possibly can!


 This is Lucy doing her Michael Jackson Face. Check out that nose.

We spent the morning at the pool. From 10-1 the kids played with their buddies and I chatted with mine. At 1:00 we headed home so I could shower and get ready to take Jonathan to treatment.

You know what makes a person feel good- A romper. Cute and comfortable.
 I have to leave the house at 2 to pick Jonathan up at 2:30. We leave Jonathan's office at 2:30 and head to downtown Dallas for our 3:10 appointment.
My mom went with us to treatment. I usually drive but this day she drove and it was nice to relax in the back seat.
 Jonathan goes back at 3:10 and I sit in the waiting room. Sometimes I read, Sometimes I talk to whoever is with me, but when Ellen is on I just watch her. For 20 minutes I can forget all about the days stresses because Ellen cracks me up. Jonathan is usually out by 3:30 or 3:40 and we head back home. On Mondays we meet with our Radiologist-oncologist for a brief check up and then head up to do blood work with our Nuero-oncologist. We didn't leave the hospital until 4:20 yesterday.
 We left just in time to hit traffic.

 We arrived home at 5:30. I dropped Jonathan off at the house so he could finish off his work day. I checked the mail to find this sweet package from my sisters BFF and thought it was the perfect shirt to wear everyday! Thank you Cara!
 After checking the mail, I headed to the grocery store. I needed milk for the kids cereal and salad supplies for Jonathan's lunch.

 I was home by 6:20 and our dinner had been delivered. Our class is still delivering meals 3x a week and it has been wonderful.

We played with the Cobles after dinner until 8. After coming back home we bathed, brushed teeth and got into bed. The kids were asleep by 8:30. 8:30 is a late bed time for us. I prefer for them to go to bed at 7:30. But it's summer. YOLO!

After putting the kids to bed I went downstairs. I moved all the laundry baskets off my bed and put them on the floor. One day I will fold all this laundry but for now I will just dig out what I need and pretend like it is not there. (Marci just died)
 That clock by the tv says 9:00. Jonathan usually takes his last does of medicine around this time and while we he sits up for 30 minutes we watch tv. Right now we are watching househunters on netflix. I am usually asleep by the time they show the first house option.

 We go to sleep. 5:15 comes early.

I know this routine is temporary but it is also exhausting. For people who drive in traffic everyday I am sorry. You should be awarded a crown in heaven for your patience. I think it is the equivalent to Hell.

God is bigger than this and Jesus can fix-it. 

Monday, June 22, 2015

Weekend Review


Friday morning we got up super early for a 6:00 arrival at the local surgery center. Henry was scheduled to receive his second set of tubes. Poor kid has terrible ears. 

 He did great until they took him away from me and then he started yelling, "I want to go back!" Thankfully it is a quick procedure. Our sweet ENT came back to talk to us after the surgery and said that the surgery was a success. Thankfully there was adenoid regrowth and that should be the cause of all the ear infections. So he removed the adenoids for a second time and inserted a new set of tubes. Henry should be good to go until His tubes fall out or his adenoids grow back, which the Dr. said was extremely rare. Hopefully we are done with the ENT, besides regular checkups.

Henry coming off the anesthetics was a little sad/funny. He kept yelling "This is terrible. I want to go home. Get me out of here! I am so sad. This is terrible!"

Recovery has been easier than last year when he had both his tonsils and adnoids removed. Actually, we don't have time to slow down, we just keep on keepin on.


For example, Saturday we took the kids to the pool.


They were actually happy to be there... you can't tell from this pic but they enjoyed themselves.


 Sunday, we wished Daddy a Happy Father's day, we went to church and class, we played at the park, we saw INSIDE OUT, and we ended the day with Dinner together at one of our favorite local restaurants, Sake Toro.


Lucy does fine with noises except at the movie theater....



It was a good weekend. Ready to face a new day today!

God is bigger than this and Jesus can fix-it. 

Friday, June 19, 2015

Prayers for Henry Please

Hi this is Laura and Emily (Mary’s sisters).  This morning Mary is at the hospital with Henry, so we are writing an update for her.  We are asking that everyone lift little Henry up in your prayers this morning.  Henry is having his second set of ear tubes put in this morning.  Please pray boldly for a successful surgery, quick healing, no more ear infections, and no more medical drama for Mary and Jonathan.  Poor family has been through so much over the past 7 weeks!

 
Also only 19 days left to get your Team Jonathan t-shirts.  Kid t-shirts are available in both pink and blue and adult shirts are available in grey.  Thank you so much for all of you who have ordered thus far.  Please see this link to order yours today.  https://www.booster.com/jonathan They will ship out by the 22nd of July, which will be just in time for the National Brain Tumor Walk in Dallas!  We are getting our team together now. 



Funny Story….   Today we got to break Mary out of the house for just a little bit.  Thank goodness for an awesome, young, and energetic Manna, who would watch all 6 of her grandbabies so we could have sister time with Mary.    We window shopped up and down our favorite street in Frisco, TX.  We did decide to walk into one little boutique that is hit or miss most of the time.  However, today we walked in and they were having an “inside garage sale” and everything was $1.  Basically it was the most fun ever, and for $85, all six kids have boutique clothes for the next 3 years, and we have two adult cowgirl hats!  See Mary’s picture below carrying our trash bag of treasures. 




 "My heart rejoices in the Lord!  The Lord has made me strong."  1 Samuel
God is bigger than this and Jesus can fix-it.

Thursday, June 18, 2015

Struggle and Support

Names have been changed...


Advice Giver: You should join a support group.

Mary Bot: A Brain Cancer support group?

Advice Giver: Yes

Mary Bot: That seems like the lamest place I could possibly go. I don't want to be surrounded by a bunch of people with busted heads.

Advice Giver: They are going through the same thing you are...

Mary Bot: I have a busted head. No, my head is more busted. My head is the most busted. We wouldn't even be able to use our Brain Cancer card.


The more I thought about it the more I realized that we do need a support group. We need a group of people who know struggle. We need to be surrounded by people going through what we are going through. We need to be able to talk, communicate, and explode our emotions on people like us. The more I thought about it the more I realized that we already have a a support group.

We joined a support group 3 years ago. We are surrounded by people who know struggle. These people know what it is like to hurt: job loss, miscarriage, loss of a child, loss of a spouse, childbirth, stretchmarks, baby weight, debt, depression, illness, cancer, loss of a parent, abuse, loss of a house, terrible twos, terrible threes, terrible tweens, sex, drugs, and rock n' roll. We know struggle. The common denominator between all of us is Jesus.

If you are local to North Dallas I'd like to invite you to join us. We know struggle and we love Jesus. Stonebriar Community Church and The Journey Fellowship.  









Advice for joining a support group and making friends:
1. Keep going. I showed up to everything. They had to like me because I wasn't going away.
2. Ask questions. You can talk to anyone for any amount of time as long as you ask questions. I've been known to ask some random questions. Including the time that I asked a girl if she made her own sweater? Oh, it's free people. I just thought you were crafty. Which opened our conversation up to 2 things- Being crafty and shopping. Boom.
3. There is a group for everyone. We tried out several before we stuck with the Journey.
4. That's all I know.

Iron sharpens iron, and one man sharpens another. 
-Proverbs 27:17

God is bigger than this and Jesus can fix-it.